|At six months|
|Belalu a couple weeks old and finally home|
|At three months|
This possibility came as a shock to us, but not because it came out of the blue. She spent the first 10 days of her life in the NICU for neonatal seizures and they were testing her for everything under the sun. For some reason, it occurred to me that she might have dwarfism one of the first nights there, and we specifically asked about that possibility, and at the time they told us "no" very emphatically. At three months, we realized she was unable to straighten her arm and Juan was concerned that she could have CP. We started the Birth to Three program where a physical therapist, occupational therapist and teacher/coordinator come in every other week to evaluate her progress and give us goals to work towards. She has been doing very well with that and she has attained more mobility in her arms. We also had a six-month NICU follow-up visit and saw the neurologist, a PT, and the geneticist. No concerns. So imagine our shock and frustration at being told she may have dwarfism after nine months of tests and evals with whole teams of specialists. I have to say that JC has suspected all along that something wasn't right. But, it's hard when she's so small to know what is just a funny quirk of hers and what is a symptom of something greater. To me, she's just Belalu.
|At nine months on a walk with Essie|