NOTE: Please do not use any images from this blog without my permission. Thank you!

Thursday, June 7, 2012

Diagnosis

The geneticist today said that Belalu does most likely have hypochondroplasia. We'll get the test results in a month or so, but it will really just provide concrete evidence to what we all already know. Since JC had done so much research these past two and a half weeks, the diagnosis was not a surprise. Nevertheless, I thought it would somehow change my perception of things to have a specialist confirm our suspicions. My reaction, though, has been pretty much the same.

We'll take this one day at a time. Yes, there is a worry that she will be made fun of; that she will be unhappy with her condition; that she will face discrimination... the worries could go on and on. But it won't all happen at the same time and it won't be tomorrow. There is time. Time to educate ourselves and prepare her to some degree; to instill in her a sense of pride in who she is and her worthiness. Just as we would do if she were of average height.

So, tonight I'm focusing on what I can do for Belalu.

My love,
  • You will have a strong sense of self-worth. You will be loved by friends and family, and you will know you have a place in the world with people who couldn't imagine it without you.
  • You will know where you come from. There will be places that will shape your identity with their landscapes, their memories, their smells and sounds. You will belong to these places.
  • You will discover your passions, and they will help you to know joy and satisfaction throughout your life.
  • You will be compassionate and empathetic, because you will know suffering.
  • You will be strong and hopeful, because you will have overcome it.

    5 comments:

    1. that is a gorgeous picture of her! and you are an amazing mom.

      ReplyDelete
    2. She is absolutely gorgeous. I couldn't even tell. They thought my son had hypo but it turned out to be achon. My definition of beauty has opened up considerably. Before what I thought might be unusual is now so appealing. It will be okay, and she has you. Love her up, and enjoy! Congratulations on having such an amazing addition to your world.

      ReplyDelete
      Replies
      1. Thank you so much. I love this "My definition of beauty has opened up considerably. Before what I thought might be unusual is now so appealing." I know what you mean. That's interesting what you say about your son, because J still says she might have acon after all (we don't get the test results for another 3 weeks-month).

        Delete
    3. I read this post a lot. My favorite is: There will be places that will shape your identity with their landscapes, their memories, their smells and sounds. You will belong to these places.
      I think about this all the time. :) Big or small, we all have those places that don't belong to us, we belong to them.

      ReplyDelete