I’d like to talk about cultural perceptions of dwarfism, but I need to do more research first. It will be a while before I can speak first-hand of our own experience, since Belalu is still so young and her condition is not yet apparent to most people who meet her. So, for now, I’m reading and searching the Internet (though I don’t get much Internet time here, so it’ll be a long-term project).
However, one thing that has struck me right away is the fact that the only type of dwarfism named in the various foundations they have here is acondroplasia. So, as far as I can tell, if we want to connect to other families here in Spain, we would join a group dedicated specifically to acondroplasia. If you want to learn more about other types of dwarfism and didn’t speak a language other than Spanish? Well, I’m not sure what you would do. In none of the Spanish pages I’ve read so far have other types of dwarfism been mentioned, other than in a passing phrase such as “y otros tipos de enanismo”. It is quite shocking to me that when dwarfism itself is already so marginalized in society, that all but one type is not even highlighted by these foundations dedicated to promoting awareness. I should emphasize that I don't get a lot of Internet time here, so I am only sharing my first impressions, but in terms of easily accessible info on hypochondroplasia in Spain, I have not come across any.
Also, I wanted to connect with people here in Vigo, and while there is a specific group here, Fundación Magar, which says that one of its purposes is to help families connect to each other, there is no explicit info on how to do this on their site. I sent an email on Thursday, but haven’t heard anything yet. I’ll keep you posted on my progress.