After Dr. Pauli's visit we got to meet up with three other families familiar with hypochondroplasia. Fi is about 2 1/2 months older than Belalu. A is almost three years old, and P is five. The kids all had fun playing together, and the adults had plenty to talk about. It was really nice to meet everyone, and we decided we would coordinate Fi and Belalu's appointments with Dr. Pauli again next year so everyone could meet up again.
|The whole gang: of course we couldn't get a photo where they were all sitting still and/or looking at the camera at the same time ;)|
It was interesting to compare experiences. P, A, and Belalu all had neonatal seizures. A is currently weaning off her medication now, so hopefully they are in the past for her. Fi was the only one diagnosed before birth, Belalu was diagnosed at 9 months, A was in the past year, and I think, if I remember correctly, P was diagnosed when he was three.
|The Youngest Girls|
|P and A|
Did you notice Belalu's shirt???
I've mentioned before how lucky I've felt to meet so many wonderful people since Belalu's diagnosis, and I definitely felt that way after our visit to Madison. To know there are such loving families just a phone call and/or car ride away makes me feel very grateful and fortunate.